Sources of help and support
The Jennifer Trust for Spinal Muscular Atrophy - UK lead charity and network of support and advice for SMA Families JTSMA
Familes of SMA - USA site with very useful information FSMA
Disability Living Allowance (DLA) - about £70 per week and SMA qualifies for the fast track approval system Direct Gov DLA
Respironics UK - Online shop - suppilers of Child Blue Gel Mask Respironics Shop
Council Tax Reduction - you may be able to get a discount if you need to create a special room to care for your SMA child Council Tax
Alistair Edwards
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