The purpose of this site is to pass on some of the hopefully useful information and experience we gained in the use of a Bipap system for our daughter Bethan (Jan 2006- March 2008) who suffered from a terminal condition called Spinal Muscular Atrophy Type 1 Severe (SMA1)

We found this equipment (developed for adults with Sleep Disorders) proved invaluable to Bethan who struggled to breathe as her muscles wasted, but we had great difficulty in getting masks to fit her as she was so young and almost all masks were sized for adults or started at about 7 years of age.

We hope that this site will save other parents or carers some time in researching masks that will be suitable for a small child - time better spent enjoying your child.

We have no doubt that Bipap was the right choice for Bethan though opinion is still divided by "experts" for children with SMA1. In our experience it extended and vastly improved Bethan's quality of life - SMA 1 children typically only live to 6-9 months of age. For Bethan especially for her first 18 months (gradually increasing her time on her mask) - it gave her time to recuperate and helped maintain her stamina and allowed us to travel much more safely.

We have broken down the following pages into categories which we felt most appropriate.This site is very much in development. We will add a blog in due course.

 This site is still very much under construction - if you urgently need information on Bipap or Masks etc please get in touch via the form and we will try to help.